Sunday, December 30, 2007
The Woman Who Said No
When I was admitted to the hospital for my second surgery, my middle-aged roommate immediately turned her face from me. "Pull the curtain!" she instructed my nurse in a surly tone.
I quickly decided that the closed curtain was fine with me. I had no need to admit such an unpleasant person into a life that felt, at that moment, difficult enough.
However, after Ted left, it became harder to ignore the woman behind the curtain. She argued noisily with her boyfriend on the phone, then slammed down the receiver. When she refused to answer his repeated calls, her angry, self-satisfied refusal--and the constantly ringing phone--jangled in the space between us.
"Get me something to eat!" she bellowed to the front desk, after ringing her call light.
However, when the aide appeared with the liquid diet I knew all too well, she was infuriated.
"I said I wanted something to eat--not this shit."
"It's what your doctor ordered," the aide explained, politely setting down the tray.
"Then get the order changed, and bring me a goddamn turkey sandwich--on white bread!" my roommate railed. I expected the unnaturally green jello and the broth to hit the wall at any moment.
But to my amazement, within a half hour," the woman who said no" had been served another meal--including a turkey sandwich on white--just like she ordered it.
"What idiot brings a turkey sandwich without mayo?" she said, in place of thank you. The aide and I exchanged a look
But a moment later, the mayo appeared.
In the course of the day, I heard my roommate say no to the boots that stimulate circulation after surgery. "They're effing hot. You wear them if they're so great," she yelled at the nurse.
She also refused to get up and walk, though the nurses repeatedly and patiently explained how important it was for her healing. Eventually they stopped asking.
I pretended the curtain between us was as thick as the Berlin Wall. On my side, I read, talked with my family on the phone or with the nurses I'd come to know in my first visit to the floor, and tried not to think too much about what would happen the next day.
But at three in the morning, I broke.
My roommate had called for pain medication in her own imitable way. But once again, she was unhappy with what her doctor had ordered.
"No Percocet!" she shouted. "I want Dilautid!"
Assuming, as I often do, that "orders" are unimpeachable, I figured we both were in for a long night after she refused the Percs. She had already begun to moan with theatrical gusto.
A short time later, the nurse returned with her drug of choice.
Well, that did it. It was three in the morning, and my roommate obviously had no desire to speak to me, but I couldn't remain silent.
"I have to admire your ability to say no," I said--and in many ways, I meant it. "I thought the only possible answer around here was 'okay.'"
"Yeah, I been listening to you," she snorted. "I bet you've been walked on your whole life."
Hmmm...I contemplated that.
Then she asked me about my upcoming surgery. Apparently, our lives had permeated the curtain more than either of us cared to admit.
"I'm cancer free for over a year," she said. "I beat it and you can, too--if you stop being such a wimp."
I contemplated some more...
The next morning, just before my surgery, the nurse came in and said she was being discharged.
"What if I'm not ready to go?" she asked.
"I'm sorry," the nurse said. "Do you have clothes to wear home?"
"No, I came to the hospital naked," my roommate snapped and turned her back.
Only after the nurse left did she begin to cry. She was still in a lot of pain, she said; and there was no one at home to take care of her.
She rang the call bell repeatedly, complaining about pain, an inability to stand or make it to the bathroom. She couldn't possibly go home; she wouldn't.
A short time later, the orderlies came to wheel me to surgery. Since her back was to the wall, I assumed my roommate was sleeping.
But just as I reached the door, she called out to me. "Hey, good luck, okay?"
I thanked her and told her I would see her when I got back.
However, when I came in from the recovery room, her bed was made up and empty as if she'd never been there.
I continued to think about her though--about the power and limitation of the "no" she used so frequently. I wondered what her life was like, and if she really had no one at all to help her out.
And though I did not envy her life, I learned something from her. On my last day in the hospital, the nurse came to give me one of the painful heparin shots I'd been receiving twice a day.
Their purpose is to prevent blood clots. And since I was taking long, frequent walks in the halls (wanting to see the Charles River!) I didn't really think I needed them.
"What if I said I didn't want it?" I asked the nurse, covering my arm with my sleeve. "What if I just said 'no?'"
"You could do that, I suppose," the nurse said, withdrawing the dreaded needle. "I'll mark you down as non-compliant."
Non-compliant. It's something I've rarely been called, but on that morning, it felt like an unexpected victory.
Sending you warm thoughts,
Kerstin
be healthy
be non-compliant
be what you wish to be
(as sandburg - or was it stevens - almost said) :)
best wishes
(The last time I spent a night in hospital, I shared a ward with several other patients, one of whom had vaguely similar characteristics to your roommate. I think the other guy in the ward desperately wanted to knife him. However, I did warm to him when he had visitors and directed their attention to me by referring to, "That boy over there.")
Best wishes for a great New Year with all the most hoped-for news, Patry.
Meanwhile, I have been silently chewing my nails on your behalf because I almost got killed at MGH trying to be nice to everyone. See, I was employed there as well as a patient, and it's a teaching hospital, and I had all these ideas about being respectful and congenial with my colleagues, contributing to science, blah, blah, blah. Okay, it wasn't a dramatic almost-got-killed scenario; it was more torture by inches. In return for all my conviviality and chipper attitude, I got to spend HOURS at a toss of my precious irreplaceable time waiting for overbooked fifteen-minute appointments, a resident broke my latest met trying to get a biopsy, a chief lied to me and attempted to humiliate me in front of a cadre of other residents, and a surgeon tried to boss me around like he was in charge of this project, not me. After that I started insisting on things -- like a different surgeon.
I am sending you a long letter of unsolicited advice which I hope you will feel free to ignore if you like. Saying no -- sometimes graciously, sometimes not -- to other people telling you what you should do is another activity you may become well familiar with in the coming months. Everyone's got an opinion. None of them has to live with the consequences.
Just for the record, I've been a "noncompliant" metastatic malignant melanoma patient for almost thirty years. I pick and choose what I will comply with and how, and I don't hire doctors or engage the services of institutions who can't handle this approach. My way is not the right way for everyone, and I like to think I'm not nearly as horrible as your recent very sad roommate, but I'm just sayin', there's worse things to be than "noncompliant," especially in an overcrowded teaching hospital.
Hang in there, Patry. Here's hoping for better in the new year.
xoxo
Hang in there Patry...with a base of "friends as wide as I see on your site, balancing should be like a walk in the park. If you feel yourself losing your balance though, reach out to some of the hands being held up...We are here to help...Be well...
Love,
D.
Liquid: Thank you for stopping by to leave your good words.
floots: "be what you wish to be" I can't imagine a better new year's greeting. Same to you, my friend!
pete: Assertiveness with humor and maybe even charm. That IS the perfect balance, isn't it? But if that doesn't work, I suppose angry assertiveness is better than nothing...
lorna: You raise an important point. I'm a much more stalwart defender of other family members than myself...Where do we learn such things?
amishlaw: Thank you. The woman from the story has haunted me. Sometimes the only way for me to release such a ghost is to write about it.
stacie: Thank you. It was difficult, but strangely, I missed her when she was gone.
amy: What a lovely compliment--especially from you. Thank you. I'll be in touch.
sara: Thanks for another one of your wonderful comments. I'll e-mail you...
Gary: I hope you know how much all the support I've gotten here strengthens me. Without it, I'd probably be wallowing (or worse, watching TV!) rather than attemptng to write.
...More later, but right now it's time for a nap.
Thank you so much for your wisdom and joy in these pages, Patry.
I've written a piece about the power of women saying no (to war, mostly) but am still learning to say it, myself...
xo
gayle
xoxo,
Tish
BTW, one of my mother's hospital roommates tossed her used bedpan across the room. The nurses responded by putting Depends on her. Another very good lesson.
Delia: Sometimes finding--or at least searching for--the golden thread is the only thing that gets us through. Many blessings to you.
Kathryn: I didn't expect to find anything worth contemplating at 3 in the morning from a woman I'd already decided I didn't much like....but I did. That's the strange part...
lisa: Maybe we can make 2008 the year of balance?
larramie: Thanks for reminding me that in that sense I AM non-compliant. I'm fighting back with two ounces of bliss!
marja-leena: "Good health, wishe choices, and joy" What else do we need? Thanks so much for your powerful good wishes.
Gayle: Now THAT'S something worth saying no to. Thanks for the link. I hope every reader here will check it out.
Matt: In her own way, my roommate preached a powerful sermon. I continue to think of her as she was the last time I saw her--the anger and rudeness stripped away to reveal a deep loneliness and fear. . Many thanks for the prayers.
Tish: Just as long as she doesn't write a blog post about the "wimp" in the next bed! Eek. Reminds me that it can be dangerous having a writer around...Talk soon! xox
Robin: Every person who is ill needs someone like your sister in their corner. I'm so glad your mother had her--though I'm sure you did some powerful advocating on your own. As far as the flying bedpan goes, yikes! That certainly is a lesson.
it's important to know how to strike a balance, but i have a feeling that you have it in you.
I too ho[e to see these posts collected. but this one resonates with possibility for the deeper truth of fiction.
new year's blessings!
Happy New Year Sister!!
Just calling in to say you are an inspiration.
Much love and every good wish for health, health and more health in this wonderful new year.
hope the new year brings many blessings and better health for all. sending love and good wishes every day. it is always such a treat to find a post here.
Hugs, Patry.
The way hospitals are organized now -- I mean no reflection on the people who work in them, who do the best they can -- either you or someone rooting for you has to be ready & willing to say no. & to make sure the information actually flows. When my Mom has been in the hospital, it's been extraordinary how much information gets lost every time a shift changed or a new specialist comes on board. They're *terrible* at information-handling. I don't know why, but don't assume that the pertinent information is traveling from one person to the next. It's best to be obnoxious and risk telling them something they already know. They tend to present everything they're doing and administering as something that was deeply thought out and arranged in consultation with everyone; often enough it's just something that struck somebody as a good idea after half a glance, or none, at the charts.
They'll be a lot more careful with you, too, if you strike them as someone who'll kick up a ruckus if they make a mistake :-)
Much love. Did I ever tell you how much I liked the Liar's Diary? I don't think I did, it was at some crisis-time or other. Anyway, I thought it was marvelous. Thank you (belatedly!)
This little story enthralled me. I couldn't guess where it was going. I'm glad the Berlin Wall had some cracks in it and some common ground to be shared.
Thank you for sharing and allowing us to feel connected to your life.
marilyn: Mirrors are such fickle items, aren't they? Sometimes reflecting what we want to see, and other times showing us what we need to see.
jean: Thanks so much for your continued support and love. I hope to get back to work on novels soon. In fact, today I outdid myself: I wrote 18 words.
mai wen: She had the kind of loud, clear voice that is easy to capture. I won't easily forget it.
r: As I remember, you've saved me from my own trusting nature more than once. Maybe I needed you in the hospital, too?
Sally: That's the best kind of wish/blessing I could get. Thank you!
Laura: Actually, I haven't been walked on--not because I'm very assertive (I'm not) but because I'm pretty good at avoiding mean people. If you can do that, you never need to scream "NO!" too loudly.
Sky: Actually, I think you strike quite a perfect balance between strength and love. That's what we're all aiming at.
...more later.
but we all have our ways. I will pray for you and your room mate of old.
God Bless, Deena
the inflates are hot, but they help in ways we need them..so
I'll be back my friend
fondly,
deena
I've often admired those who say no, and REALLY mean it when they say it. They seem like they know what they want, but maybe they don't...maybe their no is only a reflex, a stock answer. Maybe your roommate's boyfriend that she argued with could have taken care of her a bit, but instead, she said no.
Balance, the middle road, is where it's at. A bit of yes, a bit of no. Nothing is ever perfect. Our lives are works in progress -- we find our balance as we go along.
Your post has given me a lot to think about. Though I've always been an optimist, I still wonder if those constant nay-sayers somehow have an inside track on something I'm missing...
Wishing you a happy new year full of love, light, stories, learning, balance, and some healthy non-compliance along the way. :)
Thank you for the kindness you've shown me - it means more than I can say. Sending so many good wishes your way for the New Year, Patry.((hugs))
Still sending love your way. Deb
My heart and prayers are with you through this difficult time. It's important that you remember that doctors are human, and fallible. You have every right to question what they order, and refuse if it seems right. If the doctor really thinks it's necessary, he/she will come talk to you about it.
It's a hard lesson to learn, I know. My son was in Rainbow with Leukemia in July. I'm sure you can understand the absolute initial terror when you hear that dreaded 'cancer' word. We spent 15 days in the hospital with him being poked, prodded, tested, etc. It was terrible watching my seven-year-old being subjected to it, but I was amazed at his strength!
I'm shy by nature, particularly with authority figures, but found that where my son's treatment was concerned, I could overcome it. It was a definite learning experience, and one that I will take with me.
I'm happy to report that he is now in remission, and doing well on his targeted chemo. I hope and pray that we'll hear a similar report from you in the near future!
All my best,
Kenna
Great post! I think your roommate is partially right - that you have to look out for yourself, but I believe you should always be nice, but firm about it. Everyone wants to be treated equally and with respect and she missed the mark here. I'm glad you are doing Ok and wish you the best.
Just a quick note - I put a brief article on Gather about your book, and your illness. You've had many kind thoughts already. Here's the address for the post:
http://www.gather.com/viewArticle.jsp?articleId=281474977220209
Just know that everyone is pulling for you!
I bet Quin understands more than we know!
Hang on to those happy moments - it's what helps sustain you through the worst of any situation!
These posts are soothing.
I've been living with a rare medical condition since I was 30, diagnosed just 4 months after my marriage.
It's been quite a ride, and reading your words here - about being an advocate for oneself - I am reminded of how it took me far too long to learn this lesson. As a doctor's daughter I had a blind trust in doctors, and it wasn't until an unsupervised resident nearly killed me with his arrogance & ignorance that I finally stood up for myself.
Now, I am still nice but when I need to, I put my my foot down very firmly when it comes to unnecessary Heparin, refusing to take a medication prescribed by a harried resident that does the exact opposite of what I told him I needed, or refusing to be woken up numerous times at night when I am stable enough to be left alone from midnight to 7 am for much needed sleep.
You're lucky that someone modeled it for you (in a rather extreme way of course!) and I wish you health, happiness and success with your new book!
Warmly,
Baraka
http://rickshawdiaries.wordpress.com/2005/06/01/on-illness/
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